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| Emily and Sam |
Sam's official diagnosis was a year ago, although I
knew before then. Her regression happened in February of 2010....it hasn't even been 2 years. And yet, I feel like I've been doing this
forever. Did I really have a life before autism? It's hard to imagine....things have changed so much. But I realized the other day that even though it
feels like I've been doing this forever, I'm really just a newbie. I see other parents who have been doing this for years or for decades, and I see that I have so far to go. But if I look too far into the future it's overwhelming. I think that I need to keep my eyes focused on today and keep putting one foot in front of the other if I'm going to make it on this journey.....with Sam's hand in mine.
7 comments:
Time in our "world" does seem so long. 2012 will mark 10 years since Sky's diagnosis and that day seems like a hundred years ago. The first years, I feel, were especially hard as I was researching and processing everything.
You are right though, live in the moment. Cherish each milestone as they come. We did quite a bit of videoing with therapy early on and when I would get really discouraged, I'd go back and look at those and see the progress she had made which gave me such hope.
Know that you are not alone and that so many are just a click or call away.
Thanks Julie. :)
Sometimes I have to practice living in the moment...it's easy to slip into the "omg, what about the future" frame of mind.
We too recently passed our one year diagnosis anniversary. It went fast, but I now can't imagine a life different to one I live, which is saturated in thinking, reading, writing and talking about ASD.
Yes, autism definitely becomes all-encompassing.
Very new to this world--my 3 year old was diagnosed this past July. You so accurately describe how I feel--I can't remember what life was like before most of my resources went to Autism. Feeling a little overwhelmed today. It's helpful to know there are other moms out there going through the same struggles. Thanks.
Hi Bethany,
There are lots of us on this roller coaster! If nothing else, we're in good company. :)
Bobby'll be 22 this year; we've been dealing with the diagnosis for nearly 18 years (wow, time flies).
We're still taking it one day at a time, one moment at a time, with our three. Otherwise, it becomes too overwhelming.
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